This week its been full on!
Monday was a public holiday for the Queens Birthday weekend, so my husband took me camping, we felt like Star Son was able to hold his own with the help of his brother and sisters. I had had a rotten headache for three weeks, l kept waiting for the next “symptom” so l could go to the Dr. More symptoms never came. So l spent the long weekend camping on the banks of the Murray River but feeling like a zombie.
On the Tuesday Star Son had his first visit to the ID (infectious diseases) clinic back at the Austin Hospital. So we had arranged for me to get my blood test first and then off to the hospital l had woken up feeling good, so l was convinced his Blood count would be low and they might remove his PICC line. We got there ahead of time and still sat and waited. Eventually we got in to see the Dr who we had seen the first night of his admission. He brought us smack back down to earth telling us, “We’ll keep the PICC line in for two more weeks” which will take us up to the maximum of six weeks. Because he is young and they don’t want a chance of re-occurrinance, they’ll go for the maximum time and still he’ll be on oral meds for a few weeks after that. He was less than impressed but l tried to explain to him why it was happening and wishing l could teach him some patience.
Back at home we had an appointment with the school to see where Star Son stood in regards to finishing year 12. He’s been adamant he didn’t want to go back and for his mental health l was siding with him, but his Dad was not convinced, until his Year 12 Co-coordinator said “He’s missed too much, he won’t catch up!” So it’s official his schooling is done. Part of me was relieved, everything in him was relieved! Dad was disappointed. But also because there is no “end date” for his illness, he Is not a good risk to let back into the school even without his PICC line. I feel a little bit sad that he won’t have the Year 12 Graduation or the formal things that us parents like, but he will still attend with his Girlfriend.
Then l had a day off on Wednesday, as much as my aching head would allow.
Thursday l had a 9.30am appointment to get the blood test results of gout blood tests l had taken Tuesday. But l let everything come pouring out, every little ache, every little pain, even a few tears escaped, l just want this headache to go away!! He asked about my appetite which has been on some days non existent. Other days l force myself to eat but it tastes like cardboard. He expected that answer. So then he wanted to know about the pain, where it was what other symptoms, yes l get dizzy, yes l feel light headed but my arms and legs feel like concrete. So he says “You’re off for a CT scan! So we can rule out anything sinister.”
Back home the male Nurse, our favourite, R arrived and l asked him about it showed him my referral letter and asked him
“Will it hurt?”
“Oh No!!” He said “it’ll be all over before you know it!”
So l booked it in and took myself down there.
My husband is in some kind of denial that there is even anything wrong with me, l guess I’m not looking sick enough but I’ve been telling him for weeks “I don’t feel right it’s not normal, l feel weird!” He kept saying “Oh you’ll be fine!” He didn’t come home to attend my CT scan, l did it myself. I closed my eyes and took deep calming breaths and before l knew it.. it was all over.
So now we are waiting again, it takes two days to get the results so it’ll be next week now.
Today l spent the morning with my cousin she was doing some work at home, so she handed me the remote and said “You choose a movie!” I found one with Sarah Jessica Parker and Renee Zelweigger, about a singer, so l chose that, about two minutes into the movie SJP is meeting with her Dr and finding out she has a brain tumor!! I looked at my cousin and said “Well that’s serendipity and a good choice!” It was a crap movie though!!
Waiting, waiting, l wonder where l get my patience from!!